Difference between revisions of "Template:Article of the week"

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'''"[[Journal:Adapting data management education to support clinical research projects in an academic medical center|Adapting data management education to support clinical research projects in an academic medical center]]"'''
'''"[[Journal:Building a newborn screening information management system from theory to practice|Building a newborn screening information management system from theory to practice]]"'''


Librarians and researchers alike have long identified research [[Information management|data management]] (RDM) training as a need in biomedical [[research]]. Despite the wealth of libraries offering RDM education to their communities, clinical research is an area that has not been targeted. Clinical RDM (CRDM) is seen by its community as an essential part of the research process where established guidelines exist, yet educational initiatives in this area are unknown.
Information management systems are the central process management and communication hub for many newborn screening programs. In late 2014, Newborn Screening Ontario (NSO) undertook an end-to-end assessment of its [[information management]] needs, which resulted in a project to develop a flexible information systems (IS) ecosystem and related process changes. This enabled NSO to better manage its current and future [[workflow]] and communication needs. An idealized vision of a screening information management system (SIMS) was developed that was refined into enterprise and functional architectures. This was followed by the development of technical specifications, user requirements, and procurement. In undertaking a holistic full product lifecycle redesign approach, a number of change management challenges were faced by NSO across the entire program. Strong leadership support and full program engagement were key for overall project success. It is anticipated that improvements in program flexibility and the ability to innovate will outweigh the efforts and costs. ('''[[Journal:Building a newborn screening information management system from theory to practice|Full article...]]''')<br />
 
Leveraging my academic library’s experience supporting CRDM through informationist grants and REDCap training in our medical center, I developed a 1.5 hour CRDM workshop. This workshop was designed to use established CRDM guidelines in clinical research and address common questions asked by our community through the library’s existing data support program. The workshop was offered to the entire medical center four times between November 2017 and July 2018. This case study describes the development, implementation, and evaluation of this workshop. ('''[[Journal:Development of an electronic information system for the management of laboratory data of tuberculosis and atypical mycobacteria at the Pasteur Institute in Côte d’Ivoire|Full article...]]''')<br />
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''Recently featured'':
''Recently featured'':
: ▪ [[Journal:Adapting data management education to support clinical research projects in an academic medical center|Adapting data management education to support clinical research projects in an academic medical center]]
: ▪ [[Journal:Development of an electronic information system for the management of laboratory data of tuberculosis and atypical mycobacteria at the Pasteur Institute in Côte d’Ivoire|Development of an electronic information system for the management of laboratory data of tuberculosis and atypical mycobacteria at the Pasteur Institute in Côte d’Ivoire]]
: ▪ [[Journal:Development of an electronic information system for the management of laboratory data of tuberculosis and atypical mycobacteria at the Pasteur Institute in Côte d’Ivoire|Development of an electronic information system for the management of laboratory data of tuberculosis and atypical mycobacteria at the Pasteur Institute in Côte d’Ivoire]]
: ▪ [[Journal:Codesign of the Population Health Information Management System to measure reach and practice change of childhood obesity programs|Codesign of the Population Health Information Management System to measure reach and practice change of childhood obesity programs]]
: ▪ [[Journal:Codesign of the Population Health Information Management System to measure reach and practice change of childhood obesity programs|Codesign of the Population Health Information Management System to measure reach and practice change of childhood obesity programs]]
: ▪ [[Journal:Open data in scientific communication|Open data in scientific communication]]

Revision as of 17:13, 11 March 2019

Fig2 Pluscauskas IntJOfNeoScreen2019 5-1.png

"Building a newborn screening information management system from theory to practice"

Information management systems are the central process management and communication hub for many newborn screening programs. In late 2014, Newborn Screening Ontario (NSO) undertook an end-to-end assessment of its information management needs, which resulted in a project to develop a flexible information systems (IS) ecosystem and related process changes. This enabled NSO to better manage its current and future workflow and communication needs. An idealized vision of a screening information management system (SIMS) was developed that was refined into enterprise and functional architectures. This was followed by the development of technical specifications, user requirements, and procurement. In undertaking a holistic full product lifecycle redesign approach, a number of change management challenges were faced by NSO across the entire program. Strong leadership support and full program engagement were key for overall project success. It is anticipated that improvements in program flexibility and the ability to innovate will outweigh the efforts and costs. (Full article...)

Recently featured:

Adapting data management education to support clinical research projects in an academic medical center
Development of an electronic information system for the management of laboratory data of tuberculosis and atypical mycobacteria at the Pasteur Institute in Côte d’Ivoire
Codesign of the Population Health Information Management System to measure reach and practice change of childhood obesity programs