Journal:Restricted data management: The current practice and the future
| Full article title | Restricted data management: The current practice and the future |
|---|---|
| Journal | Journal of Privacy and Confidentiality |
| Author(s) | Jang, Joy B.; Pienta, Amy; Levenstein, Margaret; Saul, Joe |
| Author affiliation(s) | Inter-university Consortium for Political and Social Research (ICPSR) at University of Michigan |
| Primary contact | Email: oyjang at umich dot edu |
| Year published | 2023 |
| Volume and issue | 13(2) |
| Page(s) | 1–9 |
| DOI | 10.29012/jpc.844 |
| ISSN | 2575-8527 |
| Distribution license | Creative Commons Attribution-NonCommercial-NoDeriv 4.0 International |
| Website | https://journalprivacyconfidentiality.org/index.php/jpc/article/view/844 |
| Download | https://journalprivacyconfidentiality.org/index.php/jpc/article/view/844/753 (PDF) |
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This article should be considered a work in progress and incomplete. Consider this article incomplete until this notice is removed. |
Abstract
Many restricted data managing organizations across the world have adapted the Five Safes framework (i.e., safe data, projects, people, setting, and output) for their management of restricted and confidential data. While the Five Safes have been well integrated throughout the data life cycle, organizations observe several unintended challenges regarding making that data be FAIR (findable, accessible, interoperable, and reusable). In the current study, we review the current practice on restricted data management and discuss challenges and future directions, especially focusing on data use agreements, disclosure risks review, and training. In the future, restricted data managing organizations may need to proactively take into consideration reducing inequalities in access to scientific development, preventing unethical use of data in their management of restricted and confidential data, and managing various types of data.
Keywords: confidentiality, data governance, FAIR, training
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This presentation is faithful to the original, with only a few minor changes to presentation, though grammar and word usage was substantially updated for improved readability. In some cases important information was missing from the references, and that information was added.
