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Ensuring timely access to accurate data is critical for the functioning of a cancer center. Despite overlapping data needs, data are often fragmented and sequestered across multiple systems (such as the electronic health record [EHR], state and federal registries, and research databases), creating high barriers to data access for clinicians, researchers, administrators, quality officers, and patients. The creation of integrated data systems also faces technical, leadership, cost, and human resource barriers, among others. The University of Rochester's James P. Wilmot Cancer Institute (WCI) hired a small team of individuals with both technical and clinical expertise to develop a custom data management software platform—Hyperion— addressing five challenges: lowering the skill level required to maintain the system, reducing costs, allowing users to access data autonomously, optimizing data security and utilization, and shifting technological team structure to encourage rapid innovation ... (Full article...)
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