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"From biobank and data silos into a data commons: Convergence to support translational medicine"
To drive translational medicine, modern day biobanks need to integrate with other sources of data (e.g., clinical, genomics) to support novel data-intensive research. Currently, vast amounts of research and clinical data remain in silos, held and managed by individual researchers, operating under different standards and governance structures; such a framework impedes sharing and effective use of data. In this article, we describe the journey of British Columbia’s Gynecological Cancer Research Program (OVCARE) in moving a traditional tumor biobank, outcomes unit, and a collection of data silos into an integrated data commons to support data standardization and resource sharing under collaborative governance, as a means of providing the gynecologic cancer research community in British Columbia access to tissue samples and associated clinical and molecular data from thousands of patients ... (Full article...)
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