Journal:Adapting data management education to support clinical research projects in an academic medical center
Full article title | Adapting data management education to support clinical research projects in an academic medical center |
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Journal | Journal of the Medical Library Association |
Author(s) | Read, Kevin B. |
Author affiliation(s) | New York University School of Medicine |
Primary contact | Email: kevin dot read at nyumc dot org |
Year published | 2019 |
Volume and issue | 107(1) |
Page(s) | 89–97 |
DOI | 10.5195/jmla.2019.580 |
ISSN | 1558-9439 |
Distribution license | Creative Commons Attribution 4.0 International |
Website | http://jmla.pitt.edu/ojs/jmla/article/view/580/792 |
Download | http://jmla.pitt.edu/ojs/jmla/article/download/580/773 (PDF) |
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Abstract
Background
Librarians and researchers alike have long identified research data management (RDM) training as a need in biomedical research. Despite the wealth of libraries offering RDM education to their communities, clinical research is an area that has not been targeted. Clinical RDM (CRDM) is seen by its community as an essential part of the research process where established guidelines exist, yet educational initiatives in this area are unknown.
Case presentation
Leveraging my academic library’s experience supporting CRDM through informationist grants and REDCap training in our medical center, I developed a 1.5 hour CRDM workshop. This workshop was designed to use established CRDM guidelines in clinical research and address common questions asked by our community through the library’s existing data support program. The workshop was offered to the entire medical center four times between November 2017 and July 2018. This case study describes the development, implementation, and evaluation of this workshop.
Conclusions
The four workshops were well attended and well received by the medical center community, with 99% stating that they would recommend the class to others and 98% stating that they would use what they learned in their work. Attendees also articulated how they would implement the main competencies they learned from the workshop into their work. For the library, the effort to support CRDM has led to the coordination of a larger institutional collaborative training series to educate researchers on best practices with data, as well as the formation of institution-wide policy groups to address researcher challenges with CRDM, data transfer, and data sharing.
Background
For over 10 years, data management training has been identified as a need by the biomedical research community and librarians alike. From the perspective of biomedical researchers, the lack of good quality information management for research data[1][2] and an absence of training for researchers to improve their data management skills are recurring issues cited in the literature and a cause for concern for research overall.[1][3][4] Similarly, librarians practicing data management have identified that researchers generally receive no formal training in data management[5] yet have a desire to learn[6] because they lack confidence in their skills.
References
- ↑ 1.0 1.1 Anderson, N.R.; Lee, E.S.; Brockenbrough, J.S. et al. (2007). "Issues in biomedical research data management and analysis: Needs and barriers". JAMIA 14 (4): 478–88. doi:10.1197/jamia.M2114. PMC PMC2244904. PMID 17460139. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2244904.
- ↑ Wang, X.; Williams, C.; Liu, Z.H.; Croghan, J. (2019). "Big data management challenges in health research—A literature review". Briefings in Bioinformatics 20 (1): 156–67. doi:10.1093/bib/bbx086. PMID 28968677.
- ↑ Barone, L.; Williams, J.; Micklos, D. (2017). "Unmet needs for analyzing biological big data: A survey of 704 NSF principal investigators". PLoS Computer Biology 13 (10): e1005755. doi:10.1371/journal.pcbi.1005755. PMC PMC5654259. PMID 29049281. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5654259.
- ↑ Johansson, B.; Fogelberg-Dahm, M.; Wadensten, B. (2010). "Evidence-based practice: The importance of education and leadership". Journal of Nursing Management 18 (1): 70-7. doi:10.1111/j.1365-2834.2009.01060.x. PMID 20465731.
- ↑ Federer, L.M.; Lu, Y.L.; Joubert, D.J. (2016). "Data literacy training needs of biomedical researchers". Journal of the Medical Library Association 104 (1): 52–7. doi:10.3163/1536-5050.104.1.008. PMC PMC4722643. PMID 26807053. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4722643.
- ↑ Scaramozzino, J.M.; Ramírez, M.L.; McGaughey, K.J. (2012). A Study of Faculty Data Curation Behaviors and Attitudes at a Teaching-Centered University. 73. pp. 349–65. doi:10.5860/crl-255.
Notes
This presentation is faithful to the original, with only a few minor changes to presentation. In some cases important information was missing from the references, and that information was added.